<div dir="ltr">Hi Adrian:<div><br></div><div>J+K reflect what I've seen in the real world. </div><div><br></div><div>If we want discuss what might help to address these issues, I would be happy to contribute to that discussion.</div><div><br></div><div>Kind regards,</div><div>Ioana Singureanu</div><div><br></div></div><div class="gmail_extra"><br><div class="gmail_quote">On Mon, Nov 6, 2017 at 2:33 PM, Adrian Gropper <span dir="ltr"><<a href="mailto:agropper@healthurl.com" target="_blank">agropper@healthurl.com</a>></span> wrote:<br><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div dir="ltr"><div dir="auto" style="font-size:12.8px">As of November 6,</div><div dir="auto" style="font-size:12.8px">- 10 people have contributed to this thread</div><div dir="auto" style="font-size:12.8px">- 5 of the 10 have done so in private</div><span class=""><div dir="auto" style="font-size:12.8px">- 2 of the 9 are the co-chairs and they did not vote as far as I can tell</div></span><div dir="auto" style="font-size:12.8px">- A new choice, K , was added to the list</div><div dir="auto"><br>2 A - Our standards work is incomplete<br>1 B - Implementation of our profiles is too expensive<br>2 C - Why would a hospital want to make patient-directed access easier?<span class=""><br> D - HEART distracts the patient from the hospital’s portal experience<br></span>4 E - US regulations are inadequate from a patient rights perspective<br>2 F - NATE and other HIE groups don’t see the value of HEART to their business or mission<br>1 G - Patient-directed exchange does not allow the patient to pay for API access<br>3 H - CMS and VA have not endorsed HEART or put it on their road map<br>3 I - We have not done enough PR and promotion<br>1 J - People don’t know about it and don’t understand it’s value <br>1 K - Patients do not typically do not have access to their data from which to control an exchange</div><div dir="auto"><span style="font-size:12.8px"> L - Other________________________</span><br></div><div dir="auto"><span style="font-size:12.8px"><br></span></div><div>The winner is E, with 4 votes. 3 people voted for a failure to reach CMS and VA. It's interesting that all 4 of the E votes and all 3 of the H came from people that wanted their votes to be private. </div><div><br></div><div>I and J could be considered the same which would put promotion as a tie for 1st place. Furthermore, a way to look at these results is that C, I, J, and K are all in the promotion category and add up to 7 votes.</div><div><br></div><div>My take-way summary of this poll is that HEART should spend most of our energy on promotion, regulatory input, and outreach to the federal health architecture. Further standards work seems to be far down the list of priorities unless we can recruit some additional participants and voters.</div><span class="HOEnZb"><font color="#888888"><div><br></div><div>Adrian</div><div><br></div><div><br></div></font></span></div><div class="HOEnZb"><div class="h5"><div class="gmail_extra"><br><div class="gmail_quote">On Sun, Nov 5, 2017 at 12:02 PM, Adrian Gropper <span dir="ltr"><<a href="mailto:agropper@healthurl.com" target="_blank">agropper@healthurl.com</a>></span> wrote:<br><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div dir="auto">One day left to vote. Here’s a summary so far:</div><div dir="auto">- 9 people have contributed to this thread</div><div dir="auto">- 4 of the 9 have done so in private</div><div dir="auto">- 2 of the 9 are the co-chairs and they did not vote as far as I can tell</div><div dir="auto">- A new choice, J , was added to the list</div><div dir="auto"><br></div><div dir="auto">There’s still time to add your votes! The current list is below.</div><div dir="auto"><br></div><div dir="auto">Adrian</div><div dir="auto"><br></div><div dir="auto"><br></div><div><br><div class="gmail_quote"><span><div dir="auto">On Fri, Oct 27, 2017 at 8:46 PM Adrian Gropper <<a href="mailto:agropper@healthurl.com" target="_blank">agropper@healthurl.com</a>> wrote:<br></div></span><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div><span><div dir="auto">A - Our standards work is incomplete</div><div dir="auto">B - Implementation of our profiles is too expensive</div><div dir="auto">C - Why would a hospital want to make patient-directed access easier?</div><div dir="auto">D - HEART distracts the patient from the hospital’s portal experience</div><div dir="auto">E - US regulations are inadequate from a patient rights perspective</div><div dir="auto">F - NATE and other HIE groups don’t see the value of HEART to their business or mission</div><div dir="auto">G - Patient-directed exchange does not allow the patient to pay for API access</div><div dir="auto">H - CMS and VA have not endorsed HEART or put it on their road map</div><div dir="auto">I - We have not done enough PR and promotion</div></span><div dir="auto">J - People don’t know about it and don’t understand it’s value </div></div></blockquote><div dir="auto"> K - other _________________</div><span><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div><div dir="auto"></div><div dir="auto"><br></div><div dir="auto">Please vote on the list above. Each person has 3 votes to cast on one or more of the options. </div><div dir="auto"><br></div><div dir="auto">If you want your vote to be “secret” just send it to me and I promise I won’t share or even save your name. I will simply report the total count of people who voted as it grows and then tally the totals <b>before the Nov 6 call.</b></div><div dir="auto"><br></div><div dir="auto">Please share this email with anyone you know that has any idea of what we’re doing with UMA or HEART.</div></div><div dir="auto"><br></div><div dir="auto">Thank you,</div><div><div dir="auto"><br></div><div dir="auto">Adrian</div></div><div>-- <br></div><div class="m_-6505226862596420595m_778232281187133486m_-5641357492638984884gmail_signature" data-smartmail="gmail_signature"><div><div><div><div><div><div><div><br><div>Adrian Gropper MD<span style="font-size:11pt"></span><br><br><span style="font-family:"Arial",sans-serif;color:#1f497d">PROTECT YOUR FUTURE - RESTORE Health Privacy!</span><span style="font-family:"Arial",sans-serif;color:#1f497d"><br>HELP us fight for the right to control personal health data.</span></div><div><span style="color:rgb(31,73,125);font-family:Arial,sans-serif;font-size:10pt">DONATE: </span><span style="font-family:Arial,sans-serif;font-size:10pt;color:blue"><a href="https://patientprivacyrights.org/donate-3/" style="color:rgb(17,85,204)" target="_blank">https://patientprivacy<wbr>rights.org/donate-3/</a></span></div></div></div></div></div></div></div></div></div></blockquote></span></div></div><div class="m_-6505226862596420595HOEnZb"><div class="m_-6505226862596420595h5"><div dir="ltr">-- <br></div><div class="m_-6505226862596420595m_778232281187133486gmail_signature" data-smartmail="gmail_signature"><div dir="ltr"><div><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><br><div dir="ltr">Adrian Gropper MD<span style="font-size:11pt"></span><br><br><span style="font-family:"Arial",sans-serif;color:#1f497d">PROTECT YOUR FUTURE - RESTORE Health Privacy!</span><span style="font-family:"Arial",sans-serif;color:#1f497d"><br>HELP us fight for the right to control personal health data.</span></div><div dir="ltr"><span style="color:rgb(31,73,125);font-family:Arial,sans-serif;font-size:10pt">DONATE: </span><span style="font-family:Arial,sans-serif;font-size:10pt;color:blue"><a href="https://patientprivacyrights.org/donate-3/" style="color:rgb(17,85,204)" target="_blank">https://patientprivacy<wbr>rights.org/donate-3/</a></span></div></div></div></div></div></div></div></div></div></div></div></blockquote></div><br><br clear="all"><div><br></div>-- <br><div class="m_-6505226862596420595gmail_signature" data-smartmail="gmail_signature"><div dir="ltr"><div><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><br><div dir="ltr">Adrian Gropper MD<span style="font-size:11pt"></span><br><br><span style="font-family:"Arial",sans-serif;color:#1f497d">PROTECT YOUR FUTURE - RESTORE Health Privacy!</span><span style="font-family:"Arial",sans-serif;color:#1f497d"><br>HELP us fight for the right to control personal health data.</span></div><div dir="ltr"><span style="color:rgb(31,73,125);font-family:Arial,sans-serif;font-size:10pt">DONATE: </span><span style="font-family:Arial,sans-serif;font-size:10pt;color:blue"><a href="https://patientprivacyrights.org/donate-3/" style="color:rgb(17,85,204)" target="_blank">https://<wbr>patientprivacyrights.org/<wbr>donate-3/</a></span></div></div></div></div></div></div></div></div></div>
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<br></blockquote></div><br><br clear="all"><div><br></div>-- <br><div class="gmail_signature" data-smartmail="gmail_signature"> Ioana Singureanu<br> Eversolve, LLC<br> T: 603 548 5640<div></div></div>
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