<div dir="ltr"><span id="gmail-docs-internal-guid-472280fb-0de2-2688-3eb1-05ff42f714cf"><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Today we’re talking about the purpose of use claim which was proposed by Nancy and added to the UMA spec and then removed recently. The question is whether to put it back in and how.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">There is a difference between making the request, which is transactional in nature, and having the ability to ask for something. These are about having the ability to ask for something, which doesn’t fit the model. This is not a good fit.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Would you recommend something like break-the-glass where it’s in claim and scope?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Yeah, then if there needed to be some type of claim that mapped to that, that would be fine.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Debbie:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">If a patient wants to say how they share their data, wouldn’t that be purpose of use? If they set their preferences like in UMA?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Yes, but how is that expressed?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I think there are times when the authorization is acting on the patient’s consent, so the patient can share her records for the purpose of research. If it’s a narrow ecosystem, it could be that they want a person to have a particular role. </span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Would the purpose of use be presented to the AS or the RS?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">The way we had it before, it was presented to the AS because it was a claim.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">And you had an issue with that?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Yeah, it doesn’t make any sense.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Luis:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">You could imagine a grant grid where Alice says which data she grants to which class of users.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Well, people can add their own schema to do that without us putting it in the specification.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">There may be something to this class of users, and I think we’re scratching the surface of that with the er claim, but I don’t think we have enough commonality of data to standardize this.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I still think we should keep it as a scope.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Sarah:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Keep in mind that people can do it, even if we don’t include it in the specification. And if they do, they would still have to talk to each other about what they mean by “purpose of use.” So us standardizing that claim doesn’t really buy them much.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">So it sounds like we should leave it out for now, but let people try out the implementer’s drafts and include purpose of use if it turns out to be a consistent need. Debbie, do you agree, as the chair?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Debbie:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Yes, but I think we should add a note to let people know we’re thinking about it.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I think a note would be a good idea. I can add that.</span></p><br><span style="font-size:11pt;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I think that wraps it up for today.</span></span><div><span><span style="background-color:transparent;vertical-align:baseline"></span></span><font color="#000000" face="arial"><span style="font-size:14.6667px;white-space:pre-wrap"><br clear="all"></span></font><div><div class="gmail_signature"><div dir="ltr"><div style="color:rgb(136,136,136)">Sarah Squire</div><div style="color:rgb(136,136,136)">Engage Identity</div><div style="color:rgb(136,136,136)"><a href="http://engageidentity.com/" style="color:rgb(17,85,204)" target="_blank">http://engageidentity.com</a></div></div></div></div>
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