<div dir="ltr"><span id="gmail-docs-internal-guid-5e224397-a951-69d5-7f1f-abc4921eeade"><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Attending:</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy Lush</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve Maler</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian Gropper</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">David Batchelor</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Edmund Jay</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Glen Marshall</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Jim Kragh</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Justin Richer</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Sarah Squire</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Thompson Boyd</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Tom Sullivan</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Claims gathering relies heavily on the use case we’re looking at. Nancy has done a lot of work on focusing in on specific use cases.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Does anyone have more scenarios they would like to include?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I’m interested in talking about managing elderly family patient care. I also promote the HIE use case around the experience of the physician.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Glen:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I’d like to bring up three variants on the clinical research use case. The first is where you are testing a new intervention or drug that may not have a code yet. The second is a “pragmatic trial” where they are retesting the efficacy of existing interventions. The third is meta-analyses which combine multiple studies to create a large statistical base to reinvestigate things.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Do we have a tension between “patients” and “subjects”?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Glen:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">The question of informed consent is very patient-centric. Patients sometimes give blanket consent without an understanding of what they were agreeing to.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">UMA is especially appropriate for genomic research where informed prior consent is impossible.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Glen:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">In each of these, the role of the patient is different. Sometimes it’s one-time, sometimes it’s ongoing. </span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I would like to list bio banks as a fourth list item.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Behavioral health has a different set of impacts. What are the specific use cases that Alice has?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I would begin with the fact that a lot of behavioral health data is not shared. Especially sensitive data.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Another use case would be delegating access to a caregiver or advocate.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">We need to build up the topology of the ecosystem. I’m thinking about putting together an UMA spiral for each use case.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Are people interested in taking sections?</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Glen:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I’ll do the clinical reasearch ones.</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Nancy:</span></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Adrian I’ll give you C</span></p><br><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">Eve:</span></p><span style="font-size:14.6667px;font-family:arial;color:rgb(0,0,0);background-color:transparent;vertical-align:baseline;white-space:pre-wrap">I’d like to add consumer IoT data access sharing. I’ll take that one.</span></span><div><font color="#000000" face="arial"><span style="font-size:14.6667px;white-space:pre-wrap"><br clear="all"></span></font><div><div class="gmail_signature"><div dir="ltr"><div style="color:rgb(136,136,136)">Sarah Squire</div><div style="color:rgb(136,136,136)">Engage Identity</div><div style="color:rgb(136,136,136)"><a href="http://engageidentity.com/" style="color:rgb(17,85,204)" target="_blank">http://engageidentity.com</a></div></div></div></div>
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