<div dir="ltr"><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">Me:</span><div><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">From the patient perspective, we (patients) are still the last group to be "invited in," i.e. the ecosystem is set by all other players having their requirements met before a person/patient is asked "how would you like to access your data, and certify your credentials?"</span><div><font color="#666666" face="citrixsans-regular, Helvetica Neue, Helvetica, Arial, sans-serif"><span style="font-size:14px;line-height:20px"><br></span></font></div><div><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">Me:</span></div><div><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">IOW, I have yet to hear anything that flips the current "system sets security" into "patient is in control of his/her data as primary actor."<br></span><font color="#666666" face="citrixsans-regular, Helvetica Neue, Helvetica, Arial, sans-serif"><span style="font-size:14px;line-height:20px"><br></span></font><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">Me:</span></div><div><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">I'm gon' sound like a simpleton, but AFAIC patient data conversations, which to date have not included patients/end-users in active development of the infrastructure/UI/UX </span><span style="font-family:citrixsans-italic;color:rgb(102,102,102);font-size:14px;line-height:20px">at all</span><span style="color:rgb(102,102,102);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px">, are almost pointless if the phrase "patient centric" is in use. Ain't patient centric if patient is not primary assigner of rights to use of said data.</span></div><div><font color="#666666" face="citrixsans-regular, Helvetica Neue, Helvetica, Arial, sans-serif"><span style="font-size:14px;line-height:20px"><br></span></font></div><div><ul class="list-unstyled" style="margin-top:0px;margin-bottom:10px;padding-left:0px;list-style:none;color:rgb(135,135,135);font-family:citrixsans-regular,'Helvetica Neue',Helvetica,Arial,sans-serif;font-size:14px;line-height:20px;background-color:rgb(234,236,236)"><li class="chat-item chat-received" id="chat-message-7" style="margin-right:20px;height:auto;padding:5px;margin-bottom:10px;border:1px solid rgb(221,221,221);background-color:rgb(255,255,255)"><div class="chat-message" style="padding:2px 10px;color:rgb(102,102,102);word-wrap:break-word"><p style="margin:0px">You make a good point - however, profiling use of OAuth on its own is, in fact, in scope...</p></div><div class="chat-status private" style="font-size:10px;color:rgb(253,122,43);text-align:right"></div></li><li class="chat-item chat-received" id="chat-message-8" style="margin-right:20px;height:auto;padding:5px;margin-bottom:10px;border:1px solid rgb(221,221,221);background-color:rgb(255,255,255)"><div class="chat-avatar-head" style="width:30px;height:30px;font-size:20px;color:rgb(255,255,255);text-align:center;border:1px solid rgb(255,255,255);border-radius:100px;background-color:rgb(200,206,211)"><div class="citrix-icon citrix-icon-person" style="display:inline-block;font-family:CitrixIconFont;speak:none;line-height:1;color:rgb(133,152,182)"></div></div><div class="chat-sender" style="margin:0px 0px 0px 15px;font-size:11px;color:rgb(153,153,153)"><span class="chat-sender__sender" style="color:rgb(48,157,220)">Eve Maler to Everyone</span></div><div class="chat-message" style="padding:2px 10px;color:rgb(102,102,102);word-wrap:break-word"><p style="margin:0px">it's a stepping stone</p></div><div class="chat-status private" style="font-size:10px;color:rgb(253,122,43);text-align:right"></div></li><li class="chat-item chat-sent" id="chat-message-9" style="margin-left:20px;height:auto;padding:5px;margin-bottom:10px;border:1px solid rgb(221,221,221);background-color:rgb(255,255,255)"><div class="chat-avatar-head" style="width:30px;height:30px;font-size:20px;color:rgb(255,255,255);text-align:center;border:1px solid rgb(255,255,255);border-radius:100px;background-color:rgb(200,206,211)"><div class="citrix-icon citrix-icon-person" style="display:inline-block;font-family:CitrixIconFont;speak:none;line-height:1;color:rgb(133,152,182)"></div></div><div class="chat-sender" style="margin-right:15px;font-size:11px;color:rgb(153,153,153);text-align:right"><span class="chat-sender__sender" style="color:rgb(48,157,220)">Me to Everyone</span></div><div class="chat-message" style="padding:2px 10px;color:rgb(102,102,102);word-wrap:break-word"><p style="margin:0px">Understood. But as a global-patient voice for patient access to their own data, our needs/issues have NEVER been primary in development of infrastructure, protocols, semantic profiling, ANYTHING in this arena. Which is why patient engagement is still a unicorn.</p></div></li></ul><div><div class="gmail_signature"><div dir="ltr"><div><div dir="ltr"><div dir="ltr"><div><div style="font-size:13.3px;font-family:Verdana,Arial,Helvetica,sans-serif"><div style="margin:0 0 8px 0"><p style="margin:0"><span style="font-size:13.3px">Casey Quinlan, the "Mighty Mouth"</span><br></p><p style="margin:0"><a href="http://mightycasey.com/mighty-mouth-blog/" target="_blank"><b>Mighty Casey Media</b></a></p><p style="margin:0"><b><i><a href="http://cancerforchristmas.com/" target="_blank">Cancer for Christmas</a></i></b></p><p style="margin:0"><a href="https://twitter.com/mightycasey" target="_blank">Twitter</a></p><p style="margin:0"><a href="https://www.linkedin.com/in/mightycasey" target="_blank">LinkedIn</a></p><p style="margin:0"><a href="mailto:casey@mightycasey.com" target="_blank">casey@mightycasey.com</a></p><p style="margin:0">+1-804-467-5716</p></div></div></div><div><div style="font-size:13.3px;font-family:Verdana,Arial,Helvetica,sans-serif"><img src="http://p1.wisestamp.com/pixel.png?p=chrome&v=3.9.4.0&t=1317741874730&u=e8f422a50c4ca423" width="1" height="1"></div></div></div></div></div></div></div></div>
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