<div dir="ltr"><div>Adrian</div><div> </div><div>Your description sounds like a redux mix of FIPP, Privacy by Design sprinkled with HIPPA. </div><div> </div><div> I see reference to the workshop and objectives. <a href="http://csrc.nist.gov/projects/privacy_engineering/index.html">http://csrc.nist.gov/projects/privacy_engineering/index.html</a> </div><div> </div><div>Do you have a link reference that lays out the principles you listed? </div><div> </div><div> </div><div> </div><div> </div><div><p align="LEFT"></p>
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</font></p><p align="JUSTIFY"><font size="3"></font> </p><p align="JUSTIFY"><font size="3"></font> </p><p align="JUSTIFY"><font size="3"></font> </p></div></div><div class="gmail_extra"><br><div class="gmail_quote">On Mon, May 4, 2015 at 9:55 PM, Adrian Gropper <span dir="ltr"><<a href="mailto:agropper@healthurl.com" target="_blank">agropper@healthurl.com</a>></span> wrote:<br><blockquote class="gmail_quote" style="margin:0 0 0 .8ex;border-left:1px #ccc solid;padding-left:1ex"><div dir="ltr"><div>I propose we apply NIST Privacy Engineering principles to the HEART profiles. This would mean designing the profiles to allow policy to be introduced at the appropriate layer in the protocols and no sooner.<br><br></div>The most important aspects of Privacy Engineering in the HEART context are (in rough order of importance) open source, anonymity, pairwise pseudonymous identity, transparency, notice, data minimization, persistence minimization, and subject-centrality. <br><br><div><div>0 - Open Source - HEART MUST allow for implementation by open source Clients and open source authorization servers as built by the Subject.<br></div><div><br>1 - Anonymity - HEART MUST allow for anonymous access when policy allows.<br><br></div><div>2 - Pairwise Pseudonymous Identity - HEART MUST support pairwise pseudonymous identity for longitudinal aggregation of data by a single Resource Server. For the purpose of the Privacy
Engineering exercise, we need a definition of "known to the practice" as
the in-person identification of the Subject without recourse to
external verification or ID proofing. The requirement for verified identity or other policy-dependent attributes such as a discoverable pseudonym are to be separate from the core design of HEART profiles.<br><br>3 - Transparency - HEART MUST allow for the Subject to get an on-line Accounting for Disclosures while preserving a pairwise pseudonymous identity.<br><br></div><div>4 - Notice - HEART MUST allow for notice to Subjects that are willing to share a voluntary and possibly insecure notification address.<br><br></div><div>5 - Data Minimization - HEART MUST not impose minimum information disclosure requirements by design.<br><br></div><div>6 - Persistence Minimization - HEART SHOULD support automated, limited access to data by reference in order to reduce the incentive for Clients to persist unnecessary copies of the subject's data.<br><br></div><div>7 - Subject Centrality - aka the Multiple Portals Problem - HEART SHOULD allow for Subjects to specify their preferred Authorization Server in a domain-neutral (across legal, finance, health, education domains) unless expressly prohibited by law.<br></div><div><div><br></div><div>I've copied two NIST folks involved in privacy engineering and the NSTIC principles in order to make sure I'm interpreting these correctly.<span class="HOEnZb"><font color="#888888"><br><br></font></span></div><span class="HOEnZb"><font color="#888888"><div>Adrian<br clear="all"></div><div><br>-- <br><div><div dir="ltr">Adrian Gropper MD<span style="font-size:11pt"></span><font size="1"><br><font size="2">Ensure Health Information Privacy. Support Patient Privacy Rights.<br></font></font><span style="font-size:11pt"><font size="1"></font></span><font size="2"><a href="http://patientprivacyrights.org/donate-2/" target="_blank"><font color="blue"><u>http://patientprivacyrights.org/donate-2/</u></font></a><font color="blue"><u> </u></font></font><span style="font-size:11pt"></span><span style="font-size:11pt"></span><span style="font-size:11pt"><font size="1"> <br></font><div></div></span><br></div></div>
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