[Openid-specs-heart] Draft HEART Meeting Notes 2016-01-23

[Sarah Squire]

Debbie:

Anyone going to RSA or HIMSS?

Kenneth:

Yeah, we’ll be in the interoperability showcase.

Debbie:

I know MITRE will be there showing some of their HEART work.

Eve:

We decided that the goal this week, since we’re driving towards practical
profiling, we’re onto implications for claim profiling. We had done some
resource set profiling work. I think Debbie and Justin are going to put
that into spec text. Now we’re into claims to the AS so that it can adhere
to Alice’s policy decisions.

Nancy:

We’re looking at care record and delegation to third party. Then there’s
sharing with a provider or specialist. Input test results from multiple
sources. I’m sure there are many others as well.

Eve:

So behavioral data has been siloed because it’s so private, so there’s a
challenge in accounting for it.

Nancy:

Right. Behavioral health systems tend not to integrate with EMR systems.

Ken:

There are different things that apply in terms of regulation and
legislation to behavioral health.

Adrian:

The system is heavily weighted toward asking families to curate this
information and then asking providers to use that information, but the
system is tilted to make this impossible.

Eve:

Right. A patient may not be competent enough to take care of it, and the
system has protections against that.

Glen:

Sometimes notes are considered proprietary, so intellectual property comes
into play.

Eve:

I’d like to focus on what we can do today.

Adrian:

Are we saying that we want mental health to have a separate AS?

Nancy:

I don’t know that we’re ready to go there yet.

Glen:

I think because mental health is an edge case in which the resource subject
isn’t necessarily the resource owner, we should leave it aside for now and
focus on patient-centered use cases.

Also research is especially complicated because of complications over
consent.

Adrian:

I think we should leave research to HEART 2.0

Debbie:

We’re not doing policy, we’re just doing policy expression.

Adrian:

We could just say that IRBs are out of scope for heart.

Eve:

That’s good because we don’t have any ability to control things that aren’t
patient-directed.

Our use cases seem to be driving toward what’s out of scope. This is
clarifying which use cases are valuable to pursue strongly. That makes me
want to go back to Nancy’s use cases and talk about which cases we’ve
pursued in terms of our flow work. For next time I would love to get to the
flows.

Sarah Squire
Engage Identity
http://engageidentity.com
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