[Openid-specs-heart] Openid-specs-heart Digest, Vol 85, Issue 5

Fri Aug 12 20:34:33 UTC 2016

What I want is immaterial.  What I want is to improve the outcomes for as many people as soon as possible and expand from there.  I think after 10 years of effort we’d stop dreaming about what could be and get serious about what is practical and sufficient for the majority of people (while allowing any one to opt out if that is their preference).

Arguing with the SPM statements is like arguing with the goals of “Voice of America”.

Do I want to live in a world where everyone is free and able to select their leaders and speak their mind?  Yes.

Would I settle for fewer people supporting stateless acts of terrorism and diplomatic settlements of disagreements amongst sovereign nations?

Yes.

Aaron Seib, CEO

@CaptBlueButton 

 (o) 301-540-2311

(m) 301-326-6843

From: Openid-specs-heart [mailto:openid-specs-heart-bounces at lists.openid.net] On Behalf Of Glen Marshall [SRS]
Sent: Friday, August 12, 2016 3:50 PM
To: openid-specs-heart at lists.openid.net
Subject: Re: [Openid-specs-heart] Openid-specs-heart Digest, Vol 85, Issue 5

Adrian,

The bolded text is part of my ideal.  

What I really want is the Ronco® option: set it and forget it.  

Glen

Glen F. Marshall

Consultant

Security Risk Solutions, Inc.

698 Fishermans Bend

Mount Pleasant, SC 29464

Tel: (610) 644-2452 

Mobile: (610) 613-3084

gfm at securityrs.com

 <http://www.securityrisksolutions.com/> www.SecurityRiskSolutions.com

From: agropper at gmail.com [mailto:agropper at gmail.com] On Behalf Of Adrian Gropper
Sent: Friday, August 12, 2016 14:18
To: Aaron Seib <aaron.seib at nate-trust.org>
Cc: Glen Marshall [SRS] <gfm at securityrs.com>; openid-specs-heart at lists.openid.net
Subject: Re: [Openid-specs-heart] Openid-specs-heart Digest, Vol 85, Issue 5

Aaron and Glen, does what the SPM folks said feel right to you, particularly the points in bold?

*	As the patient, I am the primary steward of my health information wherever it is.
*	As the primary steward, I have full access to all of my health information.
*	As the primary steward, I can determine who has access to which segments of my health information.
*	As the primary steward, I am notified about changes and access by others to my health information.
*	Stewardship of my health information is done through a single tool (web page or application) across my service providers.

Image removed by sender.Adrian

On Fri, Aug 12, 2016 at 1:25 PM, Aaron Seib <aaron.seib at nate-trust.org> wrote:

This is how 98.5 percent of the world feels most of the time about almost every aspect of their care.  This is the 80% of the solution we should focus on enabling recognizing that profiles are a critical component to build on top of this ability.

I am in the same shoes as Glen.

Aaron Seib

The trick to establishing trust is to avoid all tricks.  Especially tricks on yourself.

-------- Original message --------
From: "Glen Marshall [SRS]" <gfm at securityrs.com> 
Date: 8/12/16 12:59 PM (GMT-05:00) 
To: openid-specs-heart at lists.openid.net 
Subject: Re: [Openid-specs-heart] Openid-specs-heart Digest, Vol 85, Issue 5 

I’m still struggling with a very simple use case and how to express it using HEART.

As a Medicare recipient, I have supplemental insurance and Medicare Part D.  In addition, I have a primary care physician, a handful of specialists, a dentist, a periodontist, a preferred drug store, a mail-order pharmacy, a preferred radiological imaging practice, a preferred lab company, an occasional massage therapist, two designated people to make decisions if I am unable, and several online medical records.  Privacy is not my main concern; information sharing is key.  I want all of those who provide health care and related services to have the same information and share it among themselves freely.  Then I will depend less on my memory and record-keeping.  It is all a bit tenuous now, and I feel burdened by having to manage it all.

So, how do I relieve myself of the management burden, let every provider and insurer share all the data, get to see my health data in one place, ensure that the two people I’ve designated also have the same access, and avoid having my data used for marketing or financial purposes?  

I don’t expect HEART to be the solution, of course, but it needs to be part of it.

Glen F. Marshall

Consultant

Security Risk Solutions, Inc.

698 Fishermans Bend

Mount Pleasant, SC 29464

Tel: (610) 644-2452 <tel:%28610%29%20644-2452>  

Mobile: (610) 613-3084 <tel:%28610%29%20613-3084> 

gfm at securityrs.com

 <http://www.securityrisksolutions.com/> www.SecurityRiskSolutions.com

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-- 

Adrian Gropper MD

PROTECT YOUR FUTURE - RESTORE Health Privacy!
HELP us fight for the right to control personal health data.
DONATE:  <http://patientprivacyrights.org/donate-2/> http://patientprivacyrights.org/donate-2/ 

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