[Openid-specs-heart] Openid-specs-heart Digest, Vol 85, Issue 5

[Adrian Gropper]

Aaron and Glen, does what the SPM folks said feel right to you,
particularly the points in bold?

   - As the patient, I am the primary steward of my health information
*wherever
   it is*.
   - As the primary steward, I have full access to all of my health
   information.
   - As the primary steward, I can determine who has access to which
   segments of my health information.
   - As the primary steward, I am notified about changes and access by
   others to my health information.
   - Stewardship of my health information is done through a single tool
   (web page or application) *across my service providers*.

Adrian


On Fri, Aug 12, 2016 at 1:25 PM, Aaron Seib <aaron.seib at nate-trust.org>
wrote:

> This is how 98.5 percent of the world feels most of the time about almost
> every aspect of their care.  This is the 80% of the solution we should
> focus on enabling recognizing that profiles are a critical component to
> build on top of this ability.
>
> I am in the same shoes as Glen.
>
>
>
> Aaron Seib
>
> The trick to establishing trust is to avoid all tricks.  Especially tricks
> on yourself.
>
>
> -------- Original message --------
> From: "Glen Marshall [SRS]" <gfm at securityrs.com>
> Date: 8/12/16 12:59 PM (GMT-05:00)
> To: openid-specs-heart at lists.openid.net
> Subject: Re: [Openid-specs-heart] Openid-specs-heart Digest, Vol 85, Issue
> 5
>
> I’m still struggling with a very simple use case and how to express it
> using HEART.
>
>
>
> As a Medicare recipient, I have supplemental insurance and Medicare Part
> D.  In addition, I have a primary care physician, a handful of specialists,
> a dentist, a periodontist, a preferred drug store, a mail-order pharmacy, a
> preferred radiological imaging practice, a preferred lab company, an
> occasional massage therapist, two designated people to make decisions if I
> am unable, and several online medical records.  Privacy is not my main
> concern; information sharing is key.  I want all of those who provide
> health care and related services to have the same information and share it
> among themselves freely.  Then I will depend less on my memory and
> record-keeping.  It is all a bit tenuous now, and I feel burdened by having
> to manage it all.
>
>
>
> So, how do I relieve myself of the management burden, let every provider
> and insurer share all the data, get to see my health data in *one* place,
> ensure that the two people I’ve designated also have the same access, and
> avoid having my data used for marketing or financial purposes?
>
>
>
> I don’t expect HEART to be the solution, of course, but it needs to be
> part of it.
>
>
>
>
>
> Glen F. Marshall
>
> Consultant
>
> Security Risk Solutions, Inc.
>
> 698 Fishermans Bend
>
> Mount Pleasant, SC 29464
>
> Tel: (610) 644-2452
>
> Mobile: (610) 613-3084
>
> gfm at securityrs.com
>
> www.SecurityRiskSolutions.com <http://www.securityrisksolutions.com/>
>
> _______________________________________________
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> Openid-specs-heart at lists.openid.net
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>
>


-- 

Adrian Gropper MD

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