[Openid-specs-heart] The Number and Ownership of Authorization Servers.

[Glen Marshall [SRS]]

Aaron,

Yes, a PPRN use case might be helpful, as the data-sharing paradigms are 
difference from CDRNs.  Would you like to write the use case?

Glen

*Glen F. Marshall*
Consultant
Security Risk Solutions, Inc.
698 Fishermans Bend
Mount Pleasant, SC 29464
Tel: (610) 644-2452
Mobile: (610) 613-3084
gfm at securityrs.com
www.SecurityRiskSolutions.com

On 12/15/15 15:11, Aaron Seib wrote:
>
> Glenn – this is a narrow slice of the type of research that we should 
> be thinking about enabling with HEART.
>
> Seriously, the PPRNs are executing far more agile processes and the 
> PMI is going to be trying even more progressive mechanisms. Don’t get 
> me wrong, we will still be doing this kind of trial but the real 
> knowledge to be harvested and one of the yet unrealized ROIs of all 
> the investment in HIT is the next generation of research on top of 
> technologies like HEART.
>
> The type of research where the person is a subject that has data taken 
> away from them and never hears from the researcher again is still 
> going to be important but from the perspective of HEART I was hoping 
> we would be looking forward not back.
>
> We need to be thinking about how a consumer can use their 
> authorization server to make data available for research purposes and 
> to enable researchers to share learning and additional questions back 
> to their partners in research – the consumer.
>
> I want to challenge you to think about it from the perspective of a 
> Person having all of their clinical information under their control 
> and an authorization server that allows them to decide how to share 
> bi-directionally with the researcher.
>
> Honestly – there is nothing wrong with thinking about how we can 
> support ongoing research but I don’t think we get to the big payoff 
> until we are reusing clinical data outside the context of the care 
> delivery system it was originally generated in.
>
> Aaron Seib, CEO
>
> @CaptBlueButton
>
>  (o) 301-540-2311
>
> (m) 301-326-6843
>
> <nate-trust.org>
>
>

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