[Openid-specs-heart] Patient-Powered Research Networks

[Glen Marshall [SRS]]

Team,

In addition to the Clinical Research Data Networks (CDRNs) that are 
under discussion in our current use case, PCORi also has sponsored 
Patient-Powered Research Networks (PPRNs).  These comprise patients 
and/or caregivers who play an active role in patient-centered 
comparative effectiveness research.  This is analogous to closed social 
network groups, where the participants are actively communication with 
each other, sometimes with their actual identities.

A current list of such networks is at 
http://www.pcornet.org/patient-powered-research-networks/

PCORi has an excellent overview of what is meant by "engagement": 
http://www.pcori.org/funding-opportunities/what-we-mean-engagement

I do not know if PPRNs would provide an interesting use case for HEART.  
Take a look and tell me what you think.

Best,
Glen

-- 

*Glen F. Marshall*
Consultant
Security Risk Solutions, Inc.
698 Fishermans Bend
Mount Pleasant, SC 29464
Tel: (610) 644-2452
Mobile: (610) 613-3084
gfm at securityrs.com
www.SecurityRiskSolutions.com

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