[Openid-specs-heart] Draft HEART Meeting Notes 2015-08-24

[Sarah Squire]

Attendees:

Debbie Bucci

Thompson Boyd

Sarah Squire

Adrian Gropper

Catherine Schulten

Abbie Barbir

Justin Richer

Danny van Leeuwen

Andrew Hughes

Eve Maler

Jeffrey Shultz

Josh Mandel

William Kinsley

Glen Marshall

Chad Evans

Edmund Jay

Michael Magrath

Dale Moberg

Ishmal Bartley

Jin Wen

Jim Kragh

Salvatore D’Agostino

Discussion:

Semantic Profiles

Are we waiting on use cases before creating a semantic profile?

We will create the profile based on SMART on FHIR. We should inject scopes
and other pieces of semantic information as we come across a need for them
in the use cases.

Alice Enrolls with PCP (
https://docs.google.com/document/d/1IvbdWerdvMuA1dQ-KQvVKqIBrAas7FoenNVUtgpqYrw/edit
)

We discussed the problem statement for the use case “Alice Enrolls with PCP
and Sets Up Two-Way Exchange of Personal Data Between EHR and PHR [OAuth
Only].” We removed a bullet point regarding use of a trust framework and
moved it to the “Setup” section, since it is an assumption, not a problem
that is addressed by this use case. We removed a bullet point regarding
messaging from the PCP to Alice’s PHR because that functionality is
encompassed in the first bullet point.

Adrian’s Use Cases


   -

   Elderly Mom with Family Caregiver
   <https://docs.google.com/document/d/1V3e_fDH63fNDsV-WOGKcyg0ebuW165DOpjY_RcuMk4U/edit>
   -

      A heartwarming true story of love and devotion. It's all about Alice!
      -

   ROI Perspective on health information sharing
   <https://docs.google.com/document/d/1biUqGwvOinf9Sj6eyh3hiiDzoccSEaz3ewOTa7WcwoY/edit#>
   -

      A true story based on paving the current cow path. It's all about the
      institution.
      -

   Only 4 Ways to Share Data
   <https://docs.google.com/document/d/17-C7nyI-ZiL4_LsFNrXXrM2MSPx4sCqXSEui2pwhVe8/edit#heading=h.mxi7vvxgyv>
   -

      From Alice's perspective. Not a full use-case but a useful way to
      understand why UMA


HIMSS Identity Task Force

Patients and their proxies are being worked on by the HIMSS identity task
force. Is the HEART project interested in learning more about this work?
Yes, Catherine will send more information to Adrian.

Elderly mom use case

Should we have more than one “payer”? Typically there are multiple payers,
but multiple payers are irrelevant to the problem being solved, so it’s
simpler to include only one.

Should we have more than one “custodian”? Usually the caregiver and the
proxy are not the same person. However, that is also irrelevant to the
problem being solved, so it’s simpler to include only one.

Are these the appropriate technical preconditions given that most
healthcare systems are very complex? These are the most appropriate for
this use case specifically.

Should required signatures be routed to a proxy, and if so, should this use
case address that? We don’t want to introduce any HIPAA violations into the
system. Things are usually only routed to the proxy when the patient is
incompetent or unable to sign, so it becomes a murky legal area.

Sarah Squire
Engage Identity
http://engageidentity.com
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