[Openid-specs-heart] Please VOTE before Election Day: What’s hindering adoption of HEART?

[Adrian Gropper]

Hi Ioana,

I agree with you. I hope the chairs take note and we can get this on the
HEART agenda.

Adrian

On Mon, Nov 6, 2017 at 2:53 PM, Ioana Singureanu <ioana.singureanu at gmail.com
> wrote:

> Hi Adrian:
>
> J+K reflect what I've seen in the real world.
>
> If we want discuss what might help to address these issues, I would be
> happy to contribute to that discussion.
>
> Kind regards,
> Ioana Singureanu
>
>
> On Mon, Nov 6, 2017 at 2:33 PM, Adrian Gropper <agropper at healthurl.com>
> wrote:
>
>> As of November 6,
>> - 10 people have contributed to this thread
>> - 5 of the 10 have done so in private
>> - 2 of the 9 are the co-chairs and they did not vote as far as I can tell
>> - A new choice, K , was added to the list
>>
>> 2   A - Our standards work is incomplete
>> 1   B - Implementation of our profiles is too expensive
>> 2   C - Why would a hospital want to make patient-directed access easier?
>>      D - HEART distracts the patient from the hospital’s portal experience
>> 4   E - US regulations are inadequate from a patient rights perspective
>> 2   F - NATE and other HIE groups don’t see the value of HEART to their
>> business or mission
>> 1   G - Patient-directed exchange does not allow the patient to pay for
>> API access
>> 3   H - CMS and VA have not endorsed HEART or put it on their road map
>> 3   I - We have not done enough PR and promotion
>> 1   J - People don’t know about it and don’t understand it’s value
>> 1   K - Patients do not typically do not have access to their data from
>> which to control an exchange
>>      L - Other________________________
>>
>> The winner is E, with 4 votes. 3 people voted for a failure to reach CMS
>> and VA. It's interesting that all 4 of the E votes and all 3 of the H came
>> from people that wanted their votes to be private.
>>
>> I and J could be considered the same which would put promotion as a tie
>> for 1st place. Furthermore, a way to look at these results is that C, I, J,
>> and K are all in the promotion category and add up to 7 votes.
>>
>> My take-way summary of this poll is that HEART should spend most of our
>> energy on promotion, regulatory input, and outreach to the federal health
>> architecture. Further standards work seems to be far down the list of
>> priorities unless we can recruit some additional participants and voters.
>>
>> Adrian
>>
>>
>>
>> On Sun, Nov 5, 2017 at 12:02 PM, Adrian Gropper <agropper at healthurl.com>
>> wrote:
>>
>>> One day left to vote. Here’s a summary so far:
>>> - 9 people have contributed to this thread
>>> - 4 of the 9 have done so in private
>>> - 2 of the 9 are the co-chairs and they did not vote as far as I can tell
>>> - A new choice, J , was added to the list
>>>
>>> There’s still time to add your votes! The current list is below.
>>>
>>> Adrian
>>>
>>>
>>>
>>> On Fri, Oct 27, 2017 at 8:46 PM Adrian Gropper <agropper at healthurl.com>
>>> wrote:
>>>
>>>> A - Our standards work is incomplete
>>>> B - Implementation of our profiles is too expensive
>>>> C - Why would a hospital want to make patient-directed access easier?
>>>> D - HEART distracts the patient from the hospital’s portal experience
>>>> E - US regulations are inadequate from a patient rights perspective
>>>> F - NATE and other HIE groups don’t see the value of HEART to their
>>>> business or mission
>>>> G - Patient-directed exchange does not allow the patient to pay for API
>>>> access
>>>> H - CMS and VA have not endorsed HEART or put it on their road map
>>>> I - We have not done enough PR and promotion
>>>> J - People don’t know about it and don’t understand it’s value
>>>>
>>>     K - other _________________
>>>
>>>>
>>>> Please vote on the list above. Each person has 3 votes to cast on one
>>>> or more of the options.
>>>>
>>>> If you want your vote to be “secret” just send it to me and I promise I
>>>> won’t share or even save your name. I will simply report the total count of
>>>> people who voted as it grows and then tally the totals *before the Nov
>>>> 6 call.*
>>>>
>>>> Please share this email with anyone you know that has any idea of what
>>>> we’re doing with UMA or HEART.
>>>>
>>>> Thank you,
>>>>
>>>> Adrian
>>>> --
>>>>
>>>> Adrian Gropper MD
>>>>
>>>> PROTECT YOUR FUTURE - RESTORE Health Privacy!
>>>> HELP us fight for the right to control personal health data.
>>>> DONATE: https://patientprivacyrights.org/donate-3/
>>>>
>>> --
>>>
>>> Adrian Gropper MD
>>>
>>> PROTECT YOUR FUTURE - RESTORE Health Privacy!
>>> HELP us fight for the right to control personal health data.
>>> DONATE: https://patientprivacyrights.org/donate-3/
>>>
>>
>>
>>
>> --
>>
>> Adrian Gropper MD
>>
>> PROTECT YOUR FUTURE - RESTORE Health Privacy!
>> HELP us fight for the right to control personal health data.
>> DONATE: https://patientprivacyrights.org/donate-3/
>>
>> _______________________________________________
>> Openid-specs-heart mailing list
>> Openid-specs-heart at lists.openid.net
>> http://lists.openid.net/mailman/listinfo/openid-specs-heart
>>
>>
>
>
> --
>    Ioana Singureanu
>    Eversolve, LLC
>    T: 603 548 5640 <(603)%20548-5640>
>



-- 

Adrian Gropper MD

PROTECT YOUR FUTURE - RESTORE Health Privacy!
HELP us fight for the right to control personal health data.
DONATE: https://patientprivacyrights.org/donate-3/
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