[Openid-specs-heart] Please VOTE before Election Day: What’s hindering adoption of HEART?

[Ioana Singureanu]

Hi Adrian:

J+K reflect what I've seen in the real world.

If we want discuss what might help to address these issues, I would be
happy to contribute to that discussion.

Kind regards,
Ioana Singureanu


On Mon, Nov 6, 2017 at 2:33 PM, Adrian Gropper <agropper at healthurl.com>
wrote:

> As of November 6,
> - 10 people have contributed to this thread
> - 5 of the 10 have done so in private
> - 2 of the 9 are the co-chairs and they did not vote as far as I can tell
> - A new choice, K , was added to the list
>
> 2   A - Our standards work is incomplete
> 1   B - Implementation of our profiles is too expensive
> 2   C - Why would a hospital want to make patient-directed access easier?
>      D - HEART distracts the patient from the hospital’s portal experience
> 4   E - US regulations are inadequate from a patient rights perspective
> 2   F - NATE and other HIE groups don’t see the value of HEART to their
> business or mission
> 1   G - Patient-directed exchange does not allow the patient to pay for
> API access
> 3   H - CMS and VA have not endorsed HEART or put it on their road map
> 3   I - We have not done enough PR and promotion
> 1   J - People don’t know about it and don’t understand it’s value
> 1   K - Patients do not typically do not have access to their data from
> which to control an exchange
>      L - Other________________________
>
> The winner is E, with 4 votes. 3 people voted for a failure to reach CMS
> and VA. It's interesting that all 4 of the E votes and all 3 of the H came
> from people that wanted their votes to be private.
>
> I and J could be considered the same which would put promotion as a tie
> for 1st place. Furthermore, a way to look at these results is that C, I, J,
> and K are all in the promotion category and add up to 7 votes.
>
> My take-way summary of this poll is that HEART should spend most of our
> energy on promotion, regulatory input, and outreach to the federal health
> architecture. Further standards work seems to be far down the list of
> priorities unless we can recruit some additional participants and voters.
>
> Adrian
>
>
>
> On Sun, Nov 5, 2017 at 12:02 PM, Adrian Gropper <agropper at healthurl.com>
> wrote:
>
>> One day left to vote. Here’s a summary so far:
>> - 9 people have contributed to this thread
>> - 4 of the 9 have done so in private
>> - 2 of the 9 are the co-chairs and they did not vote as far as I can tell
>> - A new choice, J , was added to the list
>>
>> There’s still time to add your votes! The current list is below.
>>
>> Adrian
>>
>>
>>
>> On Fri, Oct 27, 2017 at 8:46 PM Adrian Gropper <agropper at healthurl.com>
>> wrote:
>>
>>> A - Our standards work is incomplete
>>> B - Implementation of our profiles is too expensive
>>> C - Why would a hospital want to make patient-directed access easier?
>>> D - HEART distracts the patient from the hospital’s portal experience
>>> E - US regulations are inadequate from a patient rights perspective
>>> F - NATE and other HIE groups don’t see the value of HEART to their
>>> business or mission
>>> G - Patient-directed exchange does not allow the patient to pay for API
>>> access
>>> H - CMS and VA have not endorsed HEART or put it on their road map
>>> I - We have not done enough PR and promotion
>>> J - People don’t know about it and don’t understand it’s value
>>>
>>     K - other _________________
>>
>>>
>>> Please vote on the list above. Each person has 3 votes to cast on one or
>>> more of the options.
>>>
>>> If you want your vote to be “secret” just send it to me and I promise I
>>> won’t share or even save your name. I will simply report the total count of
>>> people who voted as it grows and then tally the totals *before the Nov
>>> 6 call.*
>>>
>>> Please share this email with anyone you know that has any idea of what
>>> we’re doing with UMA or HEART.
>>>
>>> Thank you,
>>>
>>> Adrian
>>> --
>>>
>>> Adrian Gropper MD
>>>
>>> PROTECT YOUR FUTURE - RESTORE Health Privacy!
>>> HELP us fight for the right to control personal health data.
>>> DONATE: https://patientprivacyrights.org/donate-3/
>>>
>> --
>>
>> Adrian Gropper MD
>>
>> PROTECT YOUR FUTURE - RESTORE Health Privacy!
>> HELP us fight for the right to control personal health data.
>> DONATE: https://patientprivacyrights.org/donate-3/
>>
>
>
>
> --
>
> Adrian Gropper MD
>
> PROTECT YOUR FUTURE - RESTORE Health Privacy!
> HELP us fight for the right to control personal health data.
> DONATE: https://patientprivacyrights.org/donate-3/
>
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>
>


-- 
   Ioana Singureanu
   Eversolve, LLC
   T: 603 548 5640
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