[Openid-specs-heart] Please VOTE before Election Day: What’s hindering adoption of HEART?

[Adrian Gropper]

As of November 6,
- 10 people have contributed to this thread
- 5 of the 10 have done so in private
- 2 of the 9 are the co-chairs and they did not vote as far as I can tell
- A new choice, K , was added to the list

2   A - Our standards work is incomplete
1   B - Implementation of our profiles is too expensive
2   C - Why would a hospital want to make patient-directed access easier?
     D - HEART distracts the patient from the hospital’s portal experience
4   E - US regulations are inadequate from a patient rights perspective
2   F - NATE and other HIE groups don’t see the value of HEART to their
business or mission
1   G - Patient-directed exchange does not allow the patient to pay for API
access
3   H - CMS and VA have not endorsed HEART or put it on their road map
3   I - We have not done enough PR and promotion
1   J - People don’t know about it and don’t understand it’s value
1   K - Patients do not typically do not have access to their data from
which to control an exchange
     L - Other________________________

The winner is E, with 4 votes. 3 people voted for a failure to reach CMS
and VA. It's interesting that all 4 of the E votes and all 3 of the H came
from people that wanted their votes to be private.

I and J could be considered the same which would put promotion as a tie for
1st place. Furthermore, a way to look at these results is that C, I, J, and
K are all in the promotion category and add up to 7 votes.

My take-way summary of this poll is that HEART should spend most of our
energy on promotion, regulatory input, and outreach to the federal health
architecture. Further standards work seems to be far down the list of
priorities unless we can recruit some additional participants and voters.

Adrian



On Sun, Nov 5, 2017 at 12:02 PM, Adrian Gropper <agropper at healthurl.com>
wrote:

> One day left to vote. Here’s a summary so far:
> - 9 people have contributed to this thread
> - 4 of the 9 have done so in private
> - 2 of the 9 are the co-chairs and they did not vote as far as I can tell
> - A new choice, J , was added to the list
>
> There’s still time to add your votes! The current list is below.
>
> Adrian
>
>
>
> On Fri, Oct 27, 2017 at 8:46 PM Adrian Gropper <agropper at healthurl.com>
> wrote:
>
>> A - Our standards work is incomplete
>> B - Implementation of our profiles is too expensive
>> C - Why would a hospital want to make patient-directed access easier?
>> D - HEART distracts the patient from the hospital’s portal experience
>> E - US regulations are inadequate from a patient rights perspective
>> F - NATE and other HIE groups don’t see the value of HEART to their
>> business or mission
>> G - Patient-directed exchange does not allow the patient to pay for API
>> access
>> H - CMS and VA have not endorsed HEART or put it on their road map
>> I - We have not done enough PR and promotion
>> J - People don’t know about it and don’t understand it’s value
>>
>     K - other _________________
>
>>
>> Please vote on the list above. Each person has 3 votes to cast on one or
>> more of the options.
>>
>> If you want your vote to be “secret” just send it to me and I promise I
>> won’t share or even save your name. I will simply report the total count of
>> people who voted as it grows and then tally the totals *before the Nov 6
>> call.*
>>
>> Please share this email with anyone you know that has any idea of what
>> we’re doing with UMA or HEART.
>>
>> Thank you,
>>
>> Adrian
>> --
>>
>> Adrian Gropper MD
>>
>> PROTECT YOUR FUTURE - RESTORE Health Privacy!
>> HELP us fight for the right to control personal health data.
>> DONATE: https://patientprivacyrights.org/donate-3/
>>
> --
>
> Adrian Gropper MD
>
> PROTECT YOUR FUTURE - RESTORE Health Privacy!
> HELP us fight for the right to control personal health data.
> DONATE: https://patientprivacyrights.org/donate-3/
>



-- 

Adrian Gropper MD

PROTECT YOUR FUTURE - RESTORE Health Privacy!
HELP us fight for the right to control personal health data.
DONATE: https://patientprivacyrights.org/donate-3/
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