[Openid-specs-heart] Identity, Directory, Agency in UMA

Josh Mandel Joshua.Mandel at childrens.harvard.edu
Tue Feb 16 19:21:06 UTC 2016

I've read this doc and littered it with questions and comments. In short:
the proposal doesn't make technical sense to me, but I think I understand
your desired outcomes. Perhaps best would be to start with an explicit list
of these outcomes instead of attempting a complete protocol flow. I'm
inferring these are:

1. A patient can participate in research by making her data, de-identified,
available to researchers in a flexible way.
2. A patient should be able to create distinct "personas" such that two
researchers would each see a different persona (same de-identified data,
but no link telling Researcher A and Researcher B that they're dealing with
the same patient).

Is that right? Are there others?

On Tue, Feb 16, 2016 at 2:02 PM, Adrian Gropper <agropper at healthurl.com>

> https://docs.google.com/document/d/1tmFcqFgA-mRsejLYf69DWN8nY_gCKdGjs3TMPejviwA/edit
> <https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1tmFcqFgA-2DmRsejLYf69DWN8nY-5FgCKdGjs3TMPejviwA_edit-3Fusp-3Ddocslist-5Fapi&d=BQMFaQ&c=qS4goWBT7poplM69zy_3xhKwEW14JZMSdioCoppxeFU&r=c7b1QeR755-dBx2b0xnlepDTylromoEzcLl-6ixmBL3TpXSxSvtAvT553fzSgLpm&m=0FMJmhehRNrnCD-vrLGsH76o-LxCfR27wIjx564HTxU&s=ge46U1ybCs3_0SGaaD9vF2oTUOkCrYvs3eECEm3JTOE&e=>
> This is an attempt at a more general alternative to the HEART research use
> case. I use participant to stand for either a patient or a clinician with
> PII resources.
> Consider this a very early draft to start discussion and not a fully
> thought-through solution.
> Can this work? Please comment on this thread if you make changes to the
> document.
> Adrian
> --
> Adrian Gropper MD
> HELP us fight for the right to control personal health data.
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