[Openid-specs-heart] Identity, Directory, Agency in UMA
Joshua.Mandel at childrens.harvard.edu
Tue Feb 16 19:21:06 UTC 2016
I've read this doc and littered it with questions and comments. In short:
the proposal doesn't make technical sense to me, but I think I understand
your desired outcomes. Perhaps best would be to start with an explicit list
of these outcomes instead of attempting a complete protocol flow. I'm
inferring these are:
1. A patient can participate in research by making her data, de-identified,
available to researchers in a flexible way.
2. A patient should be able to create distinct "personas" such that two
researchers would each see a different persona (same de-identified data,
but no link telling Researcher A and Researcher B that they're dealing with
the same patient).
Is that right? Are there others?
On Tue, Feb 16, 2016 at 2:02 PM, Adrian Gropper <agropper at healthurl.com>
> This is an attempt at a more general alternative to the HEART research use
> case. I use participant to stand for either a patient or a clinician with
> PII resources.
> Consider this a very early draft to start discussion and not a fully
> thought-through solution.
> Can this work? Please comment on this thread if you make changes to the
> Adrian Gropper MD
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